Who Are We?
We are patients and carers working together as equals with Doctors, Nurses, Cancer Managers and other professionals to help improve the patient journey.
There are also 6 locality groups within the Network that feed into the Patient Partnership
What Do We Do?
We are an integral part of the local provision of cancer services, by listening to patients and carers we can present your views and ensure your voices are heard at local Trust meetings and at regional/national levels. We meet bi-monthly to:-
- Exchange views
- Identify issues
- develop solutions
- implement improvements
Please note, whilst many of our members find these groups supportive they are not support groups, details of local support groups can be found within the pages of your local groups
What Improvements Have We Made?
Our recent work programmes have resulted in many achievements, including:-
- Patient Information - Introduction of Key Worker Cards
- Continuing Workshops to enhance skills & Knowledge of Patients and Carers
- Good Patient and Carer representation on all Network Site Specific Groups
- Annual Conference
How Can You Help
Membership of the forum is open to anyone who has been touched by cancer, for details on how to join your local patient group contact one of the network facilitators, alternatively you can register your details along with your interest to join a local group on the contact us page.
For more information on the work programme, recent achievements and meeting dates for your local group please click here
What We Do For You
As a forum we offer many opportunities to become involved in local and national cancer service provision. We will support you in undertaking 'Cancer Voices' training to help equip you with the skills you need to feel confident in getting involved in cancer care.
Many of our members have benefited from training courses including:-
- Patient Peer Reviewers
- IT Skills - With so much information on the internet and so many communications by E Mail, the opportunity to get some friendly IT training was well received by our members. We hope to run similar courses on a regular basis.
- Cancer Biology Course
- Meeting Chairs Training - The role of a chair is extremely important and can sometimes be difficult. We aim to support our chairs and potential future chairs with professional training, so that they can not only enjoy the role but also work effectively.
- Network Site Specific Group Workshop - Each tumour group has its own specific group run by professionals with one or two patient representatives attending. This workshop, explained the importance and role of these groups and gave importatn tips and advice on how to be an important voice for every patient.
- Survivorship Workshop - This included an interesting and informative talk on Cancer Related fatigue, not only what it is but how to deal with it. In the afternoon, people chose a particular group from physical, emotional or lifestyle to work through problems a cancer survivor may have experienced and how to deal with them.
Give re-imbursements to all of our members for any travel costs whilst attending training courses and meetings